Quality Of Life For Adolescent With Congenital Heart Diseases

Abstract

Background: Congenital heart disease is the most frequent form of major birth defect in adolescents. Aim: This study aims to assess quality of life for adolescent with congenital heart diseases. Design: A descriptive study. Sampling: A purposive sample comprised of 200 Adolescents diagnosed with congenital heart disease. Setting This study was conducted in the outpatient cardiology clinics in Makkah Hospitals. Tools of data collection: Tool I: included interviewing questionnaire, consisted of: Sociodemographic data, (II) Past and present Medical history, (III) adolescent’s knowledge regarding CHD, (IV) health needs of adolescents with CHD, (V) Probl[1]ems of adolescents with CHD, (VI) quality of life for adolescent with CHD adopted from PedsQL™ Cardiac Module. Tool II: Medical Records review of the adolescents Results: This study revealed that the mean age of studied adolescents was 14.85±2.82, about sixty-six percent of them were males, about seventy percent of studied adolescents had satisfactory knowledge about congenital heart disease. About fifty-seven percent of studied adolescents have moderate health problems, and fifty-four percent of them have moderate QOL. Conclusion: Upon the findings of the current study, the studied adolescents had possible needs related to congenital heart disease, also had moderate health problems and moderate total quality of life, which is being affected by their sociodemographic data, their knowledge about the disease, their health needs. There is positive relation between the adolescents’ health Problems and their quality of life. Also, there is positive relation between the adolescents’ socio- demographic data (Age, educational level, residence and financial income) and their knowledge about the congenital heart disease. Recommendation: continuous education for all adolescents with CHD about their disease, how to improve their quality of life and about their needs. Further detailed studies about adolescents with congenital heart disease and their knowledge, needs, problems and quality of life.